I’m over a month into treatment for lyme disease and something super cool happened. Totally an answer to prayer.
A piece of paper validated everything I’ve been fighting for the past few years. If you’ve seen the movie Under our Skin or checked out my LYME AWARENESS page, then you already know how the lyme tests govern whether a doctor will treat a person for lyme disease. You will also know how unreliable the ELISA test is, which ironically is the gold standard used to diagnose and treat lyme. But luckily, I have a doctor fully aware of this. So, he has given me a collection of ‘co-infection’ tests instead because apparently they are more sensitive and pick up more than the ELISA or Western Blot tests. This doctor that is treating my lyme knows that I have lyme based off of my symptoms and history, but the rest of the medical community won’t believe this to be true be because my ELISA in the past has been negative. But now, the tides are a changin! All because of a measly piece of paper. Waaachu talkin bout willis?
My labwork for my co-infections came back fine….or so I thought.
Apparently the labratory made a mistake and ‘re-sent’ me a new copy of my results.
I was reactive to anaplasma phagocytophila at 1:512!! That definitely is an abnormal level as my doctor informed me that it is quite high. Anaplasma phagocytophila is known to cause something called Ehrlichiosis, which is another tick borne infectious disease or co-infection if you will. YES, In my current situation getting diagnosed with a coinfection IS an answer to prayer because I have physical proof now that I have a “tick borne” illness!!!!
This means, there is finally physical proof on paper that I can show to my doctors and specialists that I Angela, have a tick borne disease, and I have lyme- because I have a coinfection, that I couldn’t have gotten without the lyme! So yay!
PRAISE THE LORT! HALLELUJER!
Anyways. Here’s some info on
Ehrlichosis/Anaplasmosis -check out this site!
There are two kinds of ehrlichiosis, both of which are caused by tick-borne rickettsial parasites called Ehrlichia that infect different kinds of white blood cells. In HME (human monocytic ehrlichiosis), they infect monocytes. In HGE (human granulocytic ehrlichiosis), they infect granulocytes. HGE was renamed anaplasmosis in 2003. Ticks carry many Ehrlichia-like parasites that have not been identified yet. It is likely that the lone star tick transmits HME and that the deer tick transmits HGE.
Symptoms of both ehrlichiosis and anaplasmosis include fever, malaise, headaches, chills, severe muscle aches, vomiting, anemia, lung infection, decreased white blood cells and platelets, elevated liver enzymes, seizures, encephalopathy, meningitis, confusion, ataxia, and cranial nerve palsy. Co-infection with Lyme can cause more severe symptoms. Death can result. Treatment is with doxycycline.
And just to let you know, I’ve had every single symptom mentioned above! I didn’t know that this could be the cause of my seizures and abnormal muscle movements! I love being able to piece things together. It makes me feel better if I can understand what’s going on in my body.
Anyways! I don’t want to ramble on too much!
Love yall to pieces!
hugs and smoochies!