So I turned 25 and stuff…

photo(28)Yeap! I turned 25 this past week…ew.
Let me just tell you that my life is nothing like I thought it would be at 25.
I mean, part of me is grateful for being alive but then there’s another part of me that thinks oy! How much longer will I have to go through this? Dealing with chronic illness is not something I thought would be in my future. But I’m optimistic and hopeful that I will get treatment and get better! So I’m hoping that this year will be better at least, than the past few years.
I see 3 specialists this week coming up, including an infectious disease specialist that I’m hoping can help me with Lyme treatment and a lyme diagnosis. I know all about the controversy of Lyme, and living in Canada, I know that it’s worse, so I’m just praying and remaining optimistic that someone can help me.

I didn’t plan a big birthday party this year, instead my sisters took me out for lunch and starbucks which was nice. I didn’t have too much energy, and it was kind of nice to hang out with people who would frequently ask, “How are you feeling?”. I didn’t have to wear a mask which was such a relief. I was blessed by the fact that they wanted to celebrate, because quite frankly, I was opting to do nothing. I’m also grateful that during the day my symptoms were not going crazy. They were there, but they didn’t really bother me until I got home phew! But honestly it was worth it! I got to get out of the house! FINALLY!

I also had a friend take me out for starbucks days later, which was nice and another blessing!
It was good to catch up and talk, and praise the Lord, my symptoms weren’t really bad until the evening! A few hours after our lovely coffee session, my stomach bloated to the high heavens and I took on the appearance of a beached whale. Okay, maybe just a pregnant lady, but boy was it painful! I’ve had this happen before but usually I can tolerate the dull pain. But this time..not so much. All I felt was constant pressure. Like my insides were going to burst. Yuck. I kept taking baths to try to ease the pain, and I took Metamucil thinking I was having indigestion problems. But nothing really helped, and I wasn’t having problems going to the bathroom…TMI, I know. Don’t hate. I am still bloated but the pain isn’t as bad. I have had G.E.R.D in the past, but it doesn’t really bother me much these days, so honestly I don’t think the two are connected. (They could be, but it just seems odd that out of the blue G.E.R.D would reak havok on my system.)

I have been doing some research to see if there is a connection between Lyme and bloating. I found out that lots of lymies suffer from bloating. And it makes sense because when you have any kind of infection in your body it can cause inflammation especially if there is the bacteria in area that is inflamed. I also suffer from IC, so I have a lot of pain with my bladder becoming inflamed from time to time. So I’m wondering if my GI tract might just be inflamed? I have felt nauseated these past few days and have had weird back pain, but I haven’t actually thrown up (thank you metaclopromide!). I’m sure the bloating will go down in a couple of days, because it usually But I’m not thinking this is anything serious, as I mentioned I also have IC.  (Interstitial cystitis) Soooo I’m thinking this is just an inflammatory issue.
I have also had HORRIBLE pains this week and it has kept me from being able to sleep at night. Eek.  My joints and muscles have been really painful and constantly ache. And my lower back pain has probably been the worst. I don’t know why it’s acting up, but it hurts to bend over.
I officially feel like a grandma.

I have also been trying to deal with my rashes and hives. I also wake up in the middle of the night from being insanely itchy… and when I say itchy, it’s everywhere that itches! I take oatmeal baths and stay in the tub until the itching sensation isn’t so severe and when I get out of the bath I have been putting aloe vera gel on the areas of skin that has welts on them. I’m usually okay after that for a bit. =]
I actually got oatmeal shower gel for my birthday! LOL. My mom knows me too well. (Because I’ve woken her up from taking oatmeal baths at 2am, poor lady).
In the image below the left and bottom right pictures are of random red patches with hives in them that appear out of nowhere with itching!
The top right image of that weird mark on my back/neck (with weird faint line looking things beside it, which also looks like scratches) I believe is a batronella rash. I  have posted pictures of batronella rashes  in my last post.
Usually the hives go away for the most part, but the strange batronella looking rash has not gone away, it’s been on my back/neck area for 2 months now.

photo(31)Anyways, I hope you all continue to have a happy week ahead of you. If you have had time to read this post please research lyme disease, you need to know about the worlds most current epidemic that is responsible for most chronic illnesses.
Check out a movie called Under Our Skin on youtube.

Much love. Ang

Endo…the bloatmonster!

It’s Endometriosis Awareness Month!

So Endometriosis can cause a whole whack of symptoms which are annoying and painful.
One of the things I haven’t written about is the endo bloatmonster! Ahhh!
Because endometriosis lesions act like the lining of the endometrium, at that time of the month, your lesions, wherever they are, bleed just like the endometrium except the blood has nowhere to go. So this paired with pain can cause inflammation. This is when the bloat monster likes to pop by.
There are times when I get so bloated because of this that I look like I’m about to pop out a 5 month old baby. During this time, my abdominal area is pretty sensitive, so I try not to do too much but rest with my heating pad. And as you can tell from the following picture, I have burn marks on my stomach from this. I’ve been using heating pads since 14 maybe? I used to boil water and put it in my heating pad, because warm water did nothing to ease the pain when I would have my periods. (I know it’s horrible! Could have popped the darn thing!) Now, I have an electric heating pad and still have the marks on my tummy over the many many years of “heating pad” usage. I now understand why my  pain was so unbearable, because it was from disease I never heard about or knew I had (Until recent years). I had a laproscopic surgery where they used cautery ablasion to get rid of the lesions they found behind my uterus and it’s kind of hard to tell from the pictures, but one of the incisions was made through my belly button. I think they did a pretty good job at hiding that! High five for my gyno! I have taken a fancy to baggy sweaters lately, and I think part of the reason is that it helps hide my bloatmonster when it strikes and leggings have become my best friend because they don’t put pressure on your midsection like Jeans do (I even own a pair of maternity jeans…forreal. I WERK them). Sometimes the bloatmonster likes to show up when I’m not even on my period too though, which is bananas.
But anyways the two pictures on the left and bottom is when my tummy was bloated (I’ve had worse too) and on the top right is when my tummy is not bloated. lol. Bon Appetit!
It’s endometriosis awareness month, share this with someone!